Local Support Groups for Specific Conditions

ACHE - Arthritis in Children
10 Rivergreen Crescent, Beeston, Nottingham, NG9 3EQ
0115 9283810
Telephone support for parents with a child who has been diagnosed with arthritis

RUSH - ADHD
c/o Self Help Nottingham, 32-36 Pelham Street, Nottingham
A self help group for children and families living with ADHD and associated difficulties. There are monthly meetings at the Children's Centre, City Hospital Campus on a Saturday with play facilities for children of all ages.

Able Autism and PDA Support Group
01332 841361
Family Support Group with regular social and information meetings and newsletter.

Carers Group (Autistic Spectrum Disorders)
0797 4673214
Group for parents of a child with ASD. Meets at the Albion Centre in Worksop on Wednesday mornings.

Mansfield and District Autistic Spectrum Support Group
01623 863273 or 01623 454662
Meet on the 2nd Tuesday of the Month at the Friends Meeting House, Rosemary Street, Mansfield from 7-9pm.

Nottingham Regional Society for Children and Adults with Autism (NORSACA)
348a Carlton Hill, Nottingham, NG4 1JB
0115 987 3655
central-services@norsaca.freeserve.co.uk
A range of services for children and adults with autism.

Newark Autism Group
01636 679021
A family group supporting other families and schools with autistic children by telephone and occasional meetings.

Rushcliffe Parent Support Group (Autistic Spectrum Disorder)
Meets first Monday each month 6.30-9pm in private room at the Wolds Pub, Loughborough Rd, West Bridgford, Nottingham

Nottinghamshire Royal Society for the Blind
Ortzen Street, Off Pervil Street, Radford, Nottingham, NG5 5GP
0115 9706806
nrsb@nrsb.co.uk
www.nrsb.co.uk
Offers resources, youth groups, nursery, volunteering, arts and crafts, information and visual impairment training.

Child Brain Injury Trust
0845 601 4939
helpline@cbituk.org
www.cbituk.org
Information and support for families of children with acquired brain injury.

Headway: The Brain Injury Association
4 King Edward Court, King Edward St, Nottingham, NG1 1EW
0808 8002244
enquiries@headway.org.uk
www.headway.org.uk
Information, support and services to people with head injury, their families and carers.

PASIC - Cancer and Leukaemia
c/o Ward 38, Queen's Medical Centre, Nottingham, NG7 2UH
01623 747629
mail@pasic.org.uk
www.pasic.org.uk
Emotional and financial support for parents of a child diagnosed with malignancy and being treated at a Nottingham Hospital.

Sargent Cancer Care for Children
Floor E, East Block, Queen's Medical Centre, Nottingham, NG7 2UH
0115 924 9924 ext 43987
christine.forshaw@mail.qmcuh-tr.trent.nhs.uk
Emotional support and practical and financial help to all families, children and young people diagnosed with cancer. Also offers respite and bereavement support.

Barnado's Sherwood Project (Cystic Fibrosis)
2 Clinton Ave, Sherwood Rise, Nottingham, NG5 1AW
0115 969 1177
Provides a free social work service to children and adults with CF. Open Mon-Fri 9am-5pm.

Cystic Fibrosis Trust
c/o 16 Groveside Crescent, Clifton Village, Nottingham NG11 8WT
0115 921 2795
Advice, support and assistance to families/individuals who live with a person with CF.

DELTA - Hearing Impaired
PO Box 20, Haverhill, Suffolk, CB9 7BD
0115 931 2973
enquiries@deafeducation.org.uk
Supports the national aural approach to educating deaf children.

Mansfield Deaf Society
1 Wood Street, Mansfield, Nottinghamshire NG18 1QB
01623 652029
Includes deaf youth club for 11-19yr olds (Thursday evenings 7-10pm) and social evenings for parents and children.

North Nottinghamshire Deaf Children's Group
119 Princes Street, Mansfield, Nottingham NG18 5SL
01623 467080
k.boswell@ntlworld.com
Offers support to families and carers of deaf children living in the county. Summer play scheme and library. Ages 0-11yrs.

Nottinghamshire Deaf Society
22 Forest Road West, Nottingham NG7 4EQ
0115 970 0516
nds@nottsdeaf.org
www.nottsdeaf.org
Provides services and opportunities for local deaf community. Includes book and video library, textphone directory, information service, text TV and minicom loan, playscheme, parent toddler group, welfare rights service and deaf church.

Parents of Children with Diabetes
23 Albert Street, Bottesford, Nottinghamshire NG13 0AJ
01949 843505
shepherds.bottesford@ukgateway.net
www.children-with-diabetes.com
Provides support to newly diagnosed patients and long term support through social events and meetings.

Nottinghamshire Dyslexia Association
Resource Centre, St Bartholomews Court, St Bartholomews Road, Nottingham NG3 3EH
0115 958 8400
www.nottsdyslexia.com
Advice and practical support to people of any age with dyslexia and their families. 

Dyspraxia Connexion
21 Birchdale Avenue, Hucknall, Nottingham NG15 6DL
0115 963 2220
notts@dysf.fsnet.co.uk
www.dysf.fsnet.co.uk
Activities and clubs for children and adults who have dyspraxia. Helpline and information centre are open Mon-Wed 10am-2pm. Outreach worker is available.

Nottingham Support Group for Carers of Children with Eczema
0115 926 9996
info@nottinghameczema.org.uk
www.nottinghameczema.org.uk
Meetings every 2 months at QMC.

FAB-UK (Fanconi's Anaemia)
4 Pateley Raod, Nottingham NG3 5QF
0115 926 9634
A national helpline providing information, support and contact between families of sufferers.

Fragile X Society
12 Blenheim Ave, Lowdham, Nottingham, NG14 7WD
0115 966 4865
Local support mainly by telephone or letter.

Sunshine (Immune deficiency)
Contact via Information Services, Children's Centre, City Hospital, Hucknall Road, Nottingham, NG5 1PB
0115 962 7658 ext 45667
Offers mutual support for families with children with immune deficiency.

Muscular Dystrophy Campaign
Queen's Medical Centre, Nottingham
0115 924 9924 ext 43839
www.muscular-dystrophy.org
Support for families with muscular dystrophy.

Myotonic Dystrophy Support Group
35a Carlton Hill, Carlton, Nottingham, NG4 1BG
0115 987 0080
mdsg@tesco.net
www.mdsguk.org/home1.htm
Offers help and support by telephone, links and correspondence.

Childhood Nephrotic Support
0115 989 2975
support group for children and families living with nephrotic syndrome.

Neurofibromatosis Association
Clinical Genetics, City Hospital, Hucknall Rd, Nottingham NG5 1PB
0115 969 2780

ASBAH (Spina Bifida and Hydrocephalus)
0115 953 7291

Number 28, Child and Family Counselling Service (Sexual Abuse)
28 Magdale Road, Nottingham, NG3 5DF
0115 985 8308
ennte@mail.nch.org.uk
Provides confidential help for children and young people who have been sexually abused.

Stroke Association
Regional Office, Nottingham City Hospital, Hucknall Road, Nottingham NG5 1PB
0115 9857868
cbell@stroke.org.uk
www.stroke.org.uk
Information for patients and families of any age affected by stroke.

Tracheo-oesophageal Fistula Support (TOFS)
St George's Centre, 91 Victoria Road, Netherfield, Nottingham NG4 2NN
0115 961 3092
info@tofs.org.uk
www.tofs.org.uk
Offers information and support to parents and carers of children with TOF and OA.

Nottingham Trent Twins and Multiple Births Club
0115 967 7919
dorcaspennington@yahoo.com
www.multiplebirth.co.uk
Support for families with twins or higher order births.
 

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